William Otto

William Otto
Playing catch with Daddy!

Friday, December 10, 2010

I am back!

We now have internet at home again so I will be able to keep up with this once more. We have had a lot happen since the last time I wrote. Will was diagnosed with Eosinophillic Esophagitis (EE) at the end of October. It is a complicated disorder but it basically means that he is allergic to 90% of food. www.apfed.org has some good information on the disorder if anyone is interested.
He had a g-tube (feeding tube) put in on 11-15. It has made it a lot easier to feed him with it in. He was losing so much weight before. While doing the surgery though, the doctor noticed that he has a very small trachea. She said that it was the same size as a 28 week old fetus. Not so good in a 16 month old. So, now we also know he has sub-glottic stenosis. His first surgery for that is next week on Thursday.
So there is the fast rundown of what has been happening with us. I will try to update this every day or so now. We are heading downstate today to spend time with Matts family for Christmas. I am hoping the snow storm they are predicting holds off until we are safely there!

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