William Otto

William Otto
Playing catch with Daddy!

Monday, February 28, 2011


So, obviously I have been a bit absent lately. We have so much going on recently though so I just haven't gotten to my blog much.
Well, I guess I should do a bit of an update. Thanks to some great people, we were able to get Will the backpack that he needs to house his feeding pump. It works great. He can run around and play all while his formula is being pumped into him. He also hasn't had too many vomiting episodes since having it. Yeah!!
Wills social worker through Early On told us about a month ago that we should apply for Social Security Income for Will. I didn't know anything about it at the time, but because she said to apply I did it. It took about eight hours (ugh) to fill out the online application and then Matt and I went to the interview at the social security office on Valentines Day (what a date eh?) I told the social worker then that we had applied and that we just had to wait. She said that it could take a very long time, up to a year, to hear anything and that even then we would probably be denied first and have to reapply. Well, fast forward to last Wednesday. I got a call from social security that Will had been approved and that they just needed a little more information from me and then our first check would be coming in a few days! That only took EIGHT days. We had heard stories from other parents who have had to wait up to three years. I was just blown away. So now Will gets social security income and we can use it to get all of the extra things that he needs to make his life easier that insurance won't pay for. Talk about a ton of bricks lifted off of your shoulders.
Right now I am working on organizing a 5K race for Eosinophillic Disorders. It will take place May 21st here in Negaunee. I am very excited so far at how things are coming together. All of the money raised will go to fund further research for Eosinophillic Disorders. The website I made for the race is www.5kforeosinophillicdisoreders.weebly.com if anyone wants to check it out.
Okay, I promise to try to keep this updated better. Thank you everyone for your love and support with everything that Will has been going through. Thank you thank you!

Monday, February 7, 2011

So Blessed...

Today was a difficult day. I don't feel like going into a lot of specifics, but it was hard. I battled with both of Wills insurance companies, broke down while making chocolate chip cookies because it hit me that I will never get to make those for Will, and spent a lot of time on the phone trying to work with the medical equipment supplier. All in all, it was stressful to say the least.

Then I was approached by a friend of mine who said she wanted to do a fundraiser to help cover the cost of Wills medical supplies. Then, a few minutes after that amazing news I read this verse, it is from Psalm 139.

"If I go up to the heavens, you are there;
if I make my bed in the depths, you are there.
If I rise on the wings of the dawn,
if I settle on the far side of the sea,
even there your hand will guide me,
your right hand will hold me fast.
If I say, “Surely the darkness will hide me
and the light become night around me,”
even the darkness will not be dark to you;
the night will shine like the day,
for darkness is as light to you."

"For you created my inmost being;
you knit me together in my mother’s womb.
I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
My frame was not hidden from you
when I was made in the secret place,
when I was woven together in the depths of the earth.
Your eyes saw my unformed body;
all the days ordained for me were written in your book
before one of them came to be."

The last part especially touched me. Thanks to a wonderful friend, and a wonderful God, I have been reminded that I need to let go and trust that it will all come together in God. I can't worry about tomorrow and what may come. I can't worry about how we are going to make it work. Worrying accomplishes nothing and takes up too much precious time I could be spending with my family.
So thank you to my amazing and generous friend. Thank you God for bringing me this reminder.
"And we know that for those who love God all things work together for good, for those who are called according to his purpose." Romans 8:28