Well, we are all back home now. We left last Saturday to head downstate to Matt's families house. His Grandma wasn't doing real well so we wanted to spend time with her. Will also had doctors appointments on the following Wednesday and Thursday so we thought that we would make a week of it.
The good news is that Will's appointments went really well. At his g.i. appointment the doctor decided he can start trying to eat oatmeal and wheat cereal along with his Neocate Junior formula. He will have another scope with biopsy in 6 weeks to see if that is something he can keep eating or if it has to be crossed off of the list. We switched around his medicine a bit because he is still vomiting more than he would like and because the old medicine was really hard to get in his g-tube.
Will also had an exploratory surgery done on Thursday to get a good look at his trachea since he has sub-glottic stenosis as well. The surgery went really well. The doctor gave him a couple of steroid shots in his trachea and manipulated a few things. At this time he isn't going to do anymore unless it gets worse. So no more surgeries for that!
On to the sad news. When we were about 15 mintues away from getting home last night we got a call from Matts Mom saying that his Grandma had passed away an hour before. I am glad that it was peaceful and she was at home with those she loved and who loved her. I am also very thankful that we were able to be there with her during the last week of her life. She was a good woman, Mother, Grandmother and Great Grandmother. She will be missed and remembered forever. We love you Grandma and are glad you are with Grandpa again.
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